International Rare Diseases Day

2022-02-28

On this year's International Day of Rare Diseases, the Lithuanian Association of Patients with Genetic Neuromuscular Diseases "Sraunia" expresses its support to all the people of Ukraine and solidarity with patients with rare muscle diseases who have not only been painfully touched by the "hands" of the disease, but also in the face of war, imprisoned in bombed cities, are unable to receive any help (best wishes and take care Julia).

Below we invite you to view the photographic works of Alina Ovčiarovienė, a member of our association "Sraunija", to celebrate the International Rare Diseases Day and to support organisations that help people in Ukraine.

Glory to Ukraine! 💙💛

Myopathy

Duchenne muscular dystrophy

Charcot-Marie-Tooth

Becker muscular dystrophy

Muscular dystrophy of the trunk-limbs

Spinal muscular atrophy

Myotonic dystrophy

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